Monday, November 29, 2010

Happy two months!













Tobias was born two months ago, and I can't be more thankful for how well these two months have gone. Tobias keeps growing more each day. We don't know exactly how big he is now, but all his newborn clothes are finally too small for him. During the first few weeks that he was home we could see his smile and sometimes laughter during his sleep. Now we get to enjoy his smile when we talk or sing to him, or even just when he look at us and recognize our faces.

This coming Wednesday he will have his two month check up with his pediatrician and also his first set of immunizations. So on Wednesday we will officially know how big he is and if he is growing on track. At one month old his weight was 7lb (25th percentile), height was 19 1/2 inches (35th percentile) and head circumference was 14 inches (40th percentile). Ideally we would like to see that he has jumped to the 50th percentile in all the measurements, but knowing that O-babies tend to be small, we know that probably won't be the case. So we hope that he is growing at the same rate and stays on the same percentile for weight, height and head. We will let you know after the appointment on Wednesday.


Last week Tobias had his follow-up with the surgeon that repaired the inguinal hernia and she said he did awesome. However, she also suggested that we take him to the neurosurgeon to evaluate his spine and decide if he needs an MRI or not. So we will be going back to Denver on December 9th. We are praying that he doesn't need the MRI and if he does, that he doesn't have any problems with his spine.


Last week, we celebrated Thanksgiving. We really enjoyed the visit of Mark (John's dad) and his wife Sally, who also came to see Tobias for the first time.

This are some of the things that I am thankful for:

  • For having the most wonderful man as my husband.
  • For my three amazing and healthy kids that teach me so much every day.
  • For my parents that even on those moments during my teenager years that probably wanted to throw me through the window, opened their arms and took me in their hearts one more time.
  • For my brother. I know when we were kids I took advantage of him from my position of big sister, but he didn't care and keeps teaching me how to have a noble and kind heart.
  • For Anita and all the love she gives to Juanca (my brother) and to the rest of the family, including Tobias, Emily and Nicolas.
  • For all the other members of my family, "abuelos", "nonos", aunts, uncles and cousins who made all my childhood years unforgettable.
  • For my family in law, who received Nico and me as one of them, even before John and I got married.
OK, I wasn't expecting to have such a long post, so if you made it this far, thank you so much to you too.

Felices 2 meses













Hoy Tobias esta cumpliendo dos mesesitos de vida!!. No podriamos estar mas agradecidos de lo bien que han ido estos dos meses. Tobias sigue creciendo, aunque todavia no sabemos que tan grande esta, pero la ropita de recien nacido finalmente se le esta quedando pequenha. Durante las primeras semanas que estuvo en casa, pudimos ver su sonrisa y a veces risa cuando esta durmiendo, ahora, ademas de esos momentos tambien sonrie cuando le hablamos o le cantamos o simplemente cuando reconoce nuestras caras.

Este miercoles tenemos cita con el pediatra para el chequeo de los dos meses y sus primeras vacunas. Ahi sabremos que tan grande esta y si esta creciendo adecuadamente. En la visita del primer mes Tobias estaba pesando 7lb (25% percentil), midiendo 19 pulgadas y media (35% percentil) y su cabezita media 14 pulgadas (40% percentil). Idelamente nos gustaria ver que ahora esta en el percentil 50% en todas las medidas, pero sabemos que lo mas probable es que no sea asi. Bebes que han nacido con el O, tienden a ser mas pequenhos en general. Asi que al menos esperamos que siga en el mismo percentil en la curva de crecimiento. El miercoles por la tarde les contaremos como nos fue.

La semana pasada Tobias tuvo cita con la cirujana de la hernia y en ese sentido todo esta bien. Lo unico es que ella tambien nos aconsejo que fueramos donde el neurocirujano para que mire la columna de Tobias y decida si es necesario el MRI o no. La cita con la neurocirujana la tenemos el 9 de diciembre. Rogamos que todo este bien.
La semana pasada celebramos el dia de accion de gracias y pudimos disfrutar de la companhia de Mark, el papa de John y su esposa Sally quienes vinieron a conocer a Tobias por primera vez.

Estas son algunas de las cosas por las que yo estoy agradecida:

Por tener al hombre mas maravilloso del mundo como mi esposo.
Por tener tres hijos que gozan de buena salud y que cada dia me sorprenden mas y mas.
Por mis papas quienes incluso en los momentos en los que probablemente quisieran haberme tirado por la ventana, lo que hicieron fue extender y acogerme en sus brazos una vez mas.
Por mi hermano que a pesar de todos los pellizcos que le di cuando eramos chiquitos me demuestra cada dia lo que es tener un corazon noble y tierno.
Por Anita y todo el amor que le da a Juanca y al resto de la familia, incluidos Tobias, Emily y Nicolas.
Por todos los otros miembros de mi familia, abuelos, nonos, tias, tios, primos y primas que hicieron todos los dias de mi infancia inolvidables.
Por la familia de John, que nos acogio a mi y a Nico, incluso antes de que John y yo nos casaramos.
Bueno, no esperaba escribir tan largo..asi que si llegaron hasta aca, pues muchas gracias por eso tambien!!

Saturday, November 20, 2010

Uno pensaria...

...que despues de mas de dos anhos de no poder dormir de largo ni una sola noche, no tendria problema al tener que despertarme cada dos o dos horas y media todas las noches. Bueno, no es asi!. Pero aunque suene muy raro, agradezco por cada noche en la que he tenido que cuidar de mis tres ninhos y no lo cambio por nada de este mundo. Dije TRES???..No lo puedo creer!!. Parece que al final mi jefe tiene razon, y como buenos cientificos hacemos todo por triplicado!.


Nicolas siempre ha dormido bien y creo que desde que tenia al menos 8 meses ya dormia de largo sin despertarse. Emily es otro cuento y todavia se despierta una o dos veces cada noche, aunque ahora la mayoria del tiempo se vuelve a dormir enseguida. Tobias se despierta cada 2-3 horas a comer. Lo malo es que para que coma bien y para que despues pueda volver a dormir sin sentirse mal le tengo que sacar los gases muy bien, lo que hace que cada sesion de comida dure de 40min a una hora. Durante el dia ya ha empezado ha estar mas alerta y despierto y le encanta mirar alrededor con sus ojazos. En las ocasiones en que toma la siesta, ya habia contado que duerme sin importarlo los gritos de Emily o los ladridos de Eva, pero si uno llega a arrugar un papel, o a prender o apagar un switch o incluso si por alguna razon a uno le sale una yuca, ahi mismo pega el brinco, abre los ojos y hasta ahi llega la siesta.


Al fin llevamos a Tobias a ver al pediatra para que evaluara el pliegue de piel que tiene al final de la columna. El pediatra dijo que eso es muy comun y que la mayoria de los ninhos que tienen eso, no tienen ningun problema de espina bifida. El problema es que como Tobias nacio con el onfalocele, el doctor cree que lo mejor es que lo llevemos al neurocirujano para tener otra opinion. De hecho, el llamo al neurocirujano y ella le dijo que le gustaria ver a Tobias, pero que lo mas seguro es que necesitar hacer una resonancia magnetica o MRI para asegurse de que la columna y todos los nervios esten bien. Nosotros no sabemos que hacer porque Tobias no tiene ningun otro sintoma que se pueda asociar con espina bifida oculta y es dificil tomar la decision de llevarlo a que lo duerman otra vez y pase una hora metido en una camara de resonancia magnetica. El proximo martes tenemos cita con los cirujanos que lo operaron del onfalocele y la hernia y les vamos a preguntar a ellos a ver que opinan del pliegue. Los mantendremos informados.


Y ahora aqui van algunas foticos:












Friday, November 19, 2010

You would think...

...that after more than two years of having about ZERO nights of uninterrupted sleep I wouldn't have a problem waking up every two-three hours every night. Well, you are wrong.
However, as weird as it sounds, I am thankful for all of the sleepless nights that I have spent taking care of my three children and I wouldn't change them for anything in this world. WOW..Three Children??. I guess my boss is right and as good scientists we do everything by triplicate!!

Nicolas is a great sleeper and I believe (it has been almost 11 years) that he was sleeping through the night since he was at least 8 months old until today. Now, Emily still wakes up at least once or twice every night, although most of the time she goes right back to sleep.

Tobias wakes up every two-three hours just to eat. However, he has to be burped very well, otherwise he gets very uncomfortable so his feeding sessions last between 40 min - 1 hour. During the day he is starting to be more alert each day and likes to look around with his pretty eyes. As I said before, he can sleep through Emily's screams and Eva's barks, but now, if you wrinkle some papers or if you turn a swith off/on, or even if for some reason your kness crack when you bend to pick something, then he startles and the nap is over.


We took Tobias to his pediatrician and he said the sacral dimple and y-shaped butt crack is very common and in most cases is not associated with spina bifida, but since he is an O-baby, he recommended we take him to the neurosurgeon to get a better opinion. The pediatrician actually called the neurosurgeon and she said she would like to see Tobias, but most likely she would want an MRI to make sure everything is OK. Tobias doesn't have any symptom associated with spina bifida, so it is difficult for us to decide on a major, major test such as an MRI. So we are going to wait until next Tuesday that he has an appointment with his O-surgeons to see what their opinion is.

One of our few adventures outside. Unfortunately it is very cold out, so must of the time we just stay home until any of us develops cabin fever..usually Emily.










Friday, November 12, 2010

Random pictures / Fotos



Disfrutando del sol de invierno por la ventana / Enjoying the winter sunshine through the window



La primera nevada / First snow of the season



Emily adora a su hermanito / Emily loves her little brother




No mas fotos por favor! / No more pictures please!




Durmiendo y jugando / Sleeping and playing







Nico despues de una exitosa noche de Halloween / Nico after a succesful trick or treating adventure








Tuesday, November 9, 2010

Surgery round two and other concerns

It has been a long time since my last post. I was waiting to have some pictures to show how hadsome my little guy is. But the truth is that our digital camera is the worst camera ever invented to take baby pictures. On top of that, our days do not have enough hours to do all the things we have to do, including trasnfering pictures to the computer. I have to use my time wisely because I am also working from home.

Ok, but with or without pictures I decided to post and update everybody on what is going on with our little man.

As I mentioned in my previous post, our pediatrician found Tobias had an inguinal hernia and we were waiting to have an appointment with the surgeon on Nov. 10th. To make a story short, John did some research and he found a paper in which the authors suggested that in order to decreased the chance of incarceration, the hernia repair should be done before two weeks from the original diagnosis. John called the surgeons again and wasn't happy until they agreed to have one of the other surgeons take a look at Tobias as soon as possible. I am the one who is usually worried about everything, from a simple sneeze to our famous omphalocele, and unfortunately I always imagine the worse. So it was nice to see John taking my place for a little while.
We had the appoinment with the other surgeon and she scheduled the surgery for last Friday Nov. 5th. That day we arrived to the hospital and Tobias was super calm and quite, even though he couldn't eat for 4 hours before the surgery. At 11:30 am they took him to the operating room and two hours later the surgeon came and told us the surgery had been a success. My poor little baby was out of it for most of the afternoon and didn't take a bottle again until that night. But he did great and on saturday morning he was discharged from the hospital and ready to go home.

Second Surgery: SUCCESS!!

I already mentiones that I tend to worry about everyhting and here is where our other concerns appear. I noticed Tobias has a weird skin fold at the end of his spine right above his butt. I didn't think much about it at the beggining but after spending some time with my friend Google I found some information that suggest this may be a sign of spina bifida occulta. I know, Google searches should be banned from mothers like me....From what I read, spina bifida occulta tends to be asymptomatic but in some cases it may be cause bladder or GI issues as well as problems in the legs or feet. So, it is important to detect it on time because some of this issues may be preventble by surgery and/or therapy.

Tomorrow we are going back to our pediatrician, so we'll see what he has to say. I tend to drive people crazy because I always want to be right and I am very stubborn about it. But in this case, I wouldn't be happier if I am completely wrong.

Finally, I would like to thank my brother and his wife Anita. Anita came to help us with the kids and I know my brother is missing her so much. The weather has been great here so I hope she doesn't feel too far away from home. However, it seems that we will have our first snow this Thursday and with it the ever lasting winter days.

Segunda cirugia y otras preocupaciones

Hace tiempo que no escribo nada y en parte es porque queria tener mas fotos para que todos vieran como esta de lindo mi rey morito Tobias. Pero tengo que confesar que nuestra camara es lo peor que se han inventado para tomar buenas fotos de bebes y ademas el dia parece no tener suficientes horas para hacer todo lo que tenemos que hacer, incluyendo pasar las fotos al computador.

Pero bueno, asi sin fotos decidi escribir para poner a todos al dia en la vida de Tobias.

Como les habia contado, el pediatra descubrio que Tobias tenia una hernia inguinal y estabamos esperando la cita con el cirujano el 10 de noviembre. Para hacer la historia corta, John empezo a investigar y leer articulos clinicos sobre hernias inguinales en bebes y encontro un articulo en el cual sugieren que la cirugia se haga en menos de dos semanas desde el diagnostico inicial. Me imagino que el hecho de que la hernia tambien involucraba las partes masculinas de Tobias, hicieron que John se pusiera al cargo del asunto y finalmente consiguo que otro cirujano nos viera antes del 10. Digo esto porque en general soy yo la que vive preocupada por todo, desde un simple estornudo hasta nuestro dichoso onfalocele, y lo peor es que ademas siempre me imagino lo peor.

En fin, tuvimos la cita con la otra cirujana y se programo la cirugia para el viernes pasado, 5 de noviembre. Ese dia llegamos al hospital y Tobias se porto super bien, aunque me imagino que estaba muerto del hambre porque no debia comer nada 4 horas antes de la operacion. a las 11:30am se lo llevaron a la sala de cirugia y mas o menos a la 1:30pm salio la cirujana y nos dijo que la operacion habia sido un exito. Mi pobrecito rey duro medio drogado toda la tarde y hasta por la nochecita fue que recibio el tetero otra vez.
Esa noche nos quedamos en el hospital y el sabado por la manana la cirujana dijo que Tobias estaba listo para ir a casita.

Segunda cirugia: EXITOSA!!

Bueno, volviendo al cuento de que yo me preocupo por todo, he notado que Tobias tiene un pliegue raro en la piel al final de la columna vertebral y no le habia parado muchas bolas hasta que me puse a mirar en internet (si, ya se, se deberia prohibor el uso de Google a las madres tragicas) y pues encontre alguna informacion en la que sugieren que esto puede ser un defecto llamado espina bifida oculta. Espina bifida oculta por lo general es asintomatica, pero en algunos casos puede generar problemas motrices y neurologicos. Lo importante es detectarla a tiempo y corregirla con cirugia y/o terapia.

Manana tenemos cita con el pediatra para ver el que dice. Por lo general a mi siempre me gusta tener la razon y esto, unido a mi terquedad saca de quicio a mas de uno. En este caso, nada me haria mas feliz que estar equivocada!.

Por ultimo quiero darle las gracias a mi hermano por prestarme a su esposa Anita y a Anita por venir a ayudarnos con los ninhos. Por fortuna el clima ha colaborado para que ella no se sienta tan lejos de casa, pero al parecer este Jueves ya tendremos la primera nevada y empezaran los dias de invierno que a veces parecen no tener fin.